After long stays in hospital and a medical history full of complications, you are suddenly confronted with the tube dependency of your own child. Imagine that you don’t have nearly any more strength left; energy resources are drained and yet, you still have to get through the tough process of tube weaning!
When children suffer from eating problems, the entire family system and the everyday life is affected. The following article is about Klara and how she learned to make the next progress in her eating behavior at the Eating School.
Eating is a multisensory experience. All of the body's senses are involved. In this article, our occupational therapist, Dr. Marion Russel, writes about how exactly sensory processing takes place during food intake and gives a good overview into the sensory experience of mealtime.
If you ask the parents of healthy children who eat how much their child weighs and how big they are, most of them can only answer the question approximately. If you inquire after the percentile, their expression will likely tell you this is unfamiliar territory. If you then ask after the daily caloric intake, you will receive the answer, “I have no idea, an adequate amount.”
An autistic disorder (Autism) is a pervasive developmental disorder. Different disorders are collected under the term of Autistic Spectrum Disorder (ASD). ASD are characterized by impaired social interaction, communication abnormalities and maladjusted reactions.
Over the days, weeks, months and years of having a tube-fed child, I have learnt a lot, and not just as a consequence of him being tube-fed for over five years. A lot of these lessons are generally applicable but maybe tube feeding sometimes makes certain lessons stand out more.